2e jaarlijkse bijeenkomst voor ECD-patiënten en hun families in Bethesda, MD

The 2014 Patient & Family Gathering (PFG) brought together approximately 94 patients and family members from 13 countries. The patient/family community was joined by 53 clinicians and scientists who are passionate about caring for patients and learning more about Erdheim-Chester Disease. Twenty-five clinicians/scientists provided talks on ECD and ECD support needs. A Celebration Dinner with all attendees was enjoyed, allowing time for fellowship and recognition of community leaders who dedicate their time and resources to aid the ECD community. Please see the information below for more on the PFG activities and presentations, as well as pictures from the conference.