9.º Encuentro Anual de Pacientes y Familiares de ECD, Seattle, WA

The 2024 Patient & Family Gathering (PFG) brought together 68 patients and family members from 3 countries. The patient/family community was joined by 42 clinicians and scientists who are passionate about caring for patients and learning more about Erdheim-Chester Disease. Thirteen clinicians/scientists provided talks on ECD and ECD support needs. A Celebration Dinner with all attendees was enjoyed, allowing time for fellowship and recognition of community leaders who dedicate their time and resources to aid the ECD community. Please see the information below for more on the PFG activities and presentations, as well as pictures from the conference.