10e jaarlijkse ECD-bijeenkomst voor patiënten en familieleden in Barcelona, Spanje

The 2025 Patient & Family Gathering (PFG) brought together 57 patients and family members from 16 countries. The patient/family community was joined by 37 clinicians and scientists who are passionate about caring for patients and learning more about Erdheim-Chester Disease. Sixteen clinicians/scientists provided talks on ECD and ECD support needs. A Celebration Dinner with all attendees was enjoyed, allowing time for fellowship and recognition of community leaders who dedicate their time and resources to aid the ECD community. Please see the information below for more on the PFG activities and presentations, as well as pictures from the conference.