The Fresh Faces Project Stands With ECD Survivors: These Are Their Stories Interview with Dawn Smith By Calynn M. Lawrence December 2017 I was born and raised in Chicago by a loving mother who not only taught me how to be the best mom I could be, but also gave me the...
Caitlyn Captures Hope This inspiring young advocate shares her thoughts on ECD. By Jessica Corkran, ECD Global Alliance November 28, 2017 Meet Caitlyn Walch, patient advocate star in the making. As an 11-year-old granddaughter of ECD patient Tony Giambra, she has been...
Peking Union Medical College Hospital blir nå en del av en eksklusiv gruppe sykehus med spesialkompetanse på behandling av pasienter med Erdheim-Chester-syndrom.
