The Fresh Faces Project Stands With ECD Survivors: These Are Their Stories Interview with Dawn Smith By Calynn M. Lawrence December 2017 I was born and raised in Chicago by a loving mother who not only taught me how to be the best mom I could be, but also gave me the...
Caitlyn Captures Hope This inspiring young advocate shares her thoughts on ECD. By Jessica Corkran, ECD Global Alliance November 28, 2017 Meet Caitlyn Walch, patient advocate star in the making. As an 11-year-old granddaughter of ECD patient Tony Giambra, she has been...
Il Peking Union Medical College Hospital entra a far parte di un gruppo d’élite di ospedali specializzati nel trattamento dei pazienti affetti dalla malattia di Erdheim-Chester.
Nashville, nel Tennessee, è la nuova sede in cui i pazienti affetti dalla malattia di Erdheim-Chester possono rivolgersi a medici esperti in ECD per ricevere cure.
