The Fresh Faces Project Stands With ECD Survivors: These Are Their Stories Interview with Dawn Smith By Calynn M. Lawrence December 2017 I was born and raised in Chicago by a loving mother who not only taught me how to be the best mom I could be, but also gave me the...
Caitlyn Captures Hope This inspiring young advocate shares her thoughts on ECD. By Jessica Corkran, ECD Global Alliance November 28, 2017 Meet Caitlyn Walch, patient advocate star in the making. As an 11-year-old granddaughter of ECD patient Tony Giambra, she has been...
L'hôpital de l'Union médicale de Pékin rejoint un groupe d'élite d'établissements hospitaliers spécialisés dans la prise en charge des patients atteints de la maladie d'Erdheim-Chester.
Nashville, dans le Tennessee, est le tout dernier site où les patients atteints de la maladie d'Erdheim-Chester peuvent se faire soigner par des médecins spécialisés dans cette pathologie.
