The ECD Global Alliance is pleased to announce that its 12th Annual Erdheim-Chester Disease Medical Symposium will be held August 27-29, 2027, in Glasgow, Scotland. Medical professionals, researchers, and members of the ECD community are invited to join us for...
We are excited to announce that the 12th Annual ECDGA Patient and Family Gathering will be held August 27-28, 2027, in Glasgow, Scotland! This special gathering will bring together patients, caregivers, family members, medical professionals, and supporters from around...
The ECD Global Alliance is accepting Letters of Intent for its 2026 Early Career Investigator Grant. Up to $60,000 USD will be awarded for a two-year research project focused on Erdheim-Chester Disease or related adult histiocytic disorders. International submissions...
ECD er kanskje en sjelden sykdom, men ingen trenger å stå alene i kampen mot den. Over hele verden samarbeider pasienter, omsorgspersoner, leger, forskere, frivillige og talsmenn for å skape en bedre fremtid for alle som er berørt av ECD. Avstanden mellom oss kan være stor, men vårt fellesskap...
Dagens oppdagelser skaper morgendagens muligheter. Forskningen har forandret vår kunnskap om ECD og bidrar fortsatt til å forbedre diagnosen, utvide behandlingsmulighetene og gi oss en dypere forståelse av denne sjeldne sykdommen. Hvert fremskritt begynner med nysgjerrighet,...
Every ECD story matters. In this video, Ann Zernone shares her personal perspective and reminds us of the strength, hope, and connection found within the ECD community. Watch and share to help make Erdheim-Chester disease more visible. Watch Video
