Save the Date: 2027 ECDGA Medical Symposium in Glasgow

Save the Date: 2027 ECDGA Medical Symposium in Glasgow

The ECD Global Alliance is pleased to announce that its 12th Annual Erdheim-Chester Disease Medical Symposium will be held August 27-29, 2027, in Glasgow, Scotland. Medical professionals, researchers, and members of the ECD community are invited to join us for...
Save the Date: 2027 ECDGA Patient and Family Gathering

Save the Date: 2027 ECDGA Patient and Family Gathering

We are excited to announce that the 12th Annual ECDGA Patient and Family Gathering will be held August 27-28, 2027, in Glasgow, Scotland! This special gathering will bring together patients, caregivers, family members, medical professionals, and supporters from around...
Research Funding Opportunity

Research Funding Opportunity

The ECD Global Alliance is accepting Letters of Intent for its 2026 Early Career Investigator Grant. Up to $60,000 USD will be awarded for a two-year research project focused on Erdheim-Chester Disease or related adult histiocytic disorders. International submissions...
Nuestra comunidad global de ECD

Nuestra comunidad global de ECD

La ECD puede ser una enfermedad poco frecuente, pero nadie tiene por qué afrontarla en solitario. En todo el mundo, pacientes, cuidadores, médicos, investigadores, voluntarios y defensores de los derechos de los enfermos colaboran para construir un futuro mejor para todas las personas afectadas por la ECD. La distancia puede separarnos, pero nuestra comunidad...
La investigación aporta esperanza

La investigación aporta esperanza

Los descubrimientos de hoy crean las posibilidades del mañana. La investigación ha transformado lo que sabemos sobre la ECD y sigue mejorando el diagnóstico, ampliando las opciones de tratamiento y profundizando en nuestro conocimiento de esta enfermedad rara. Cada avance comienza con la curiosidad,...
Ann Zernone’s ECD Story: Strength, Hope, and Community

Ann Zernone’s ECD Story: Strength, Hope, and Community

Every ECD story matters. In this video, Ann Zernone shares her personal perspective and reminds us of the strength, hope, and connection found within the ECD community. Watch and share to help make Erdheim-Chester disease more visible. Watch Video