Dr. Sam Reynolds of Moffitt Cancer Center shares his perspective on the importance of research in advancing understanding and care for Erdheim-Chester Disease. Watch the video and help us recognize the researchers working toward better answers and outcomes for the ECD...
The ECD Global Alliance is pleased to announce that its 12th Annual Erdheim-Chester Disease Medical Symposium will be held August 27-29, 2027, in Glasgow, Scotland. Medical professionals, researchers, and members of the ECD community are invited to join us for...
We are excited to announce that the 12th Annual ECDGA Patient and Family Gathering will be held August 27-28, 2027, in Glasgow, Scotland! This special gathering will bring together patients, caregivers, family members, medical professionals, and supporters from around...
The ECD Global Alliance is accepting Letters of Intent for its 2026 Early Career Investigator Grant. Up to $60,000 USD will be awarded for a two-year research project focused on Erdheim-Chester Disease or related adult histiocytic disorders. International submissions...
L'ECD est peut-être rare, mais personne ne doit y faire face seul. Partout dans le monde, des patients, des aidants, des médecins, des chercheurs, des bénévoles et des défenseurs de la cause travaillent ensemble pour bâtir un avenir meilleur pour toutes les personnes touchées par l'ECD. La distance nous sépare peut-être, mais notre communauté….
Les découvertes d'aujourd'hui ouvrent les perspectives de demain. La recherche a bouleversé nos connaissances sur l'ECD et continue d'améliorer le diagnostic, d'élargir les options thérapeutiques et d'approfondir notre compréhension de cette maladie rare. Chaque avancée commence par la curiosité,...
