We are excited to announce that the 12th Annual ECDGA Patient and Family Gathering will be held August 27-28, 2027, in Glasgow, Scotland!
This special gathering will bring together patients, caregivers, family members, medical professionals, and supporters from around the world. It will offer opportunities to komme i kontakt med andre who understand the ECD journey, learn from leading experts, share experiences, and strengthen our global community.
Please save the dates and begin making plans to bli med oss in Glasgow. Registration, hotel information, and the complete agenda will be announced as details become available.
We look forward to welcoming you to Scotland!
Med vennlig hilsen,
Teamet i ECD Global Alliance