An Erdheim-Chester Disease diagnosis brings questions no family should have to navigate alone. Your support helps ECDGA provide trusted information, connections to experienced care, and a community that understands. Our Year-End Campaign begins today, with donations...
Kathy Brewer finally learned the name of the disease that had made her husband, Gary, so ill. But the answer came after his death. For years, Gary’s health declined without a diagnosis, despite extensive evaluations at major medical centers. Only an autopsy revealed...
“We are excited to welcome Mary as our new Executive Director and look forward to the energy, experience, and passion she brings to our mission and our community.” – Diane Schriner, President of the Board of Directors Leadership Announcement Mary Burgin is honored to...
Up to $60,000 USD is available for a two-year project advancing research into Erdheim-Chester Disease and related adult histiocytic disorders. The ECD Global Alliance is now accepting letters of intent for its Early Career Investigator Grant, a research funding...
ECD komt misschien niet vaak voor, maar niemand hoeft het alleen te doorstaan. Over de hele wereld werken patiënten, zorgverleners, artsen, onderzoekers, vrijwilligers en belangenbehartigers samen om een betere toekomst op te bouwen voor iedereen die door ECD wordt getroffen. Afstand mag ons dan wel scheiden, maar onze gemeenschap...
