A diagnosis gives a disease a name. It does not answer every question. Where can I find experienced care? How can I learn about treatment? Who understands what my family is facing? Your generosity helps ECDGA connect patients and caregivers with information,...
Kathy Brewer learned that her husband, Gary, had Erdheim-Chester Disease only after his death. She could not change his experience, but she helped create something that would support the families who followed. That commitment became part of ECDGA’s foundation. Your...
An Erdheim-Chester Disease diagnosis brings questions no family should have to navigate alone. Your support helps ECDGA provide trusted information, connections to experienced care, and a community that understands. Our Year-End Campaign begins today, with donations...
Kathy Brewer finally learned the name of the disease that had made her husband, Gary, so ill. But the answer came after his death. For years, Gary’s health declined without a diagnosis, despite extensive evaluations at major medical centers. Only an autopsy revealed...
“Είμαστε ενθουσιασμένοι που καλωσορίζουμε τη Mary ως νέα Εκτελεστική Διευθύντρια μας και ανυπομονούμε να δούμε την ενέργεια, την εμπειρία και το πάθος που θα προσφέρει στην αποστολή μας και στην κοινότητά μας.” – Diane Schriner, Πρόεδρος του Διοικητικού Συμβουλίου Ανακοίνωση για την ανάληψη ηγετικής θέσης Η Mary Burgin έχει την τιμή να...
