“We are excited to welcome Mary as our new Executive Director and look forward to the energy, experience, and passion she brings to our mission and our community.” – Diane Schriner, President of the Board of Directors Leadership Announcement Mary Burgin is honored to...
Up to $60,000 USD is available for a two-year project advancing research into Erdheim-Chester Disease and related adult histiocytic disorders. The ECD Global Alliance is now accepting letters of intent for its Early Career Investigator Grant, a research funding...
ECD may be rare, but no one has to face it alone. Across the world, patients, caregivers, physicians, researchers, volunteers, and advocates are working together to build a stronger future for everyone affected by ECD. Distance may separate us, but our community...
Today’s discoveries create tomorrow’s possibilities. Research has transformed what we know about ECD and continues to improve diagnosis, expand treatment options, and deepen our understanding of this rare disease. Every advance begins with curiosity,...
Every ECD diagnosis has a story. Some stories begin with years of unanswered questions. Others are filled with resilience, courage, and hope. Today we honor every patient, every caregiver, and every family whose journey reminds us why awareness matters. We’d...
