NIH Rare Disease Day 2012

Δεκ 31, 2012

NIH film documenting Rare Disease Day at the NIH on February 29, 2012. The first part of the video shows an ECD display and one of our members talking with Dr. Juvianee Estrada-Veras.

ECD WaltComer Video

Δεκ 31, 2012

Walt Comer, an ECD patient, and his wife tell of their experiences of living with ECD.