Formålet med studien: To collect study samples and medical information on people with Erdheim Chester Disease.
Prosjektleder: Kevin O’Brien, CRNP
Kontaktopplysninger: Kevin O’Brien, CRNP, ko85t@nih.gov, 301-435-2824
Ønsket pasientmedvirkning: ECD patients of any gender and ethnicity age 2-80 years are eligible to enroll in this protocol.
Kjente sentre som tar imot ECD-pasienter i studien: National Institutes of Health, Bethesda, MD, USA
ClinicalTrials.gov-identifikator: NCT01417520

