Clinical and Pathophysiological Investigations Into Erdheim Chester Disease

Mar 26, 2019

Study Objective: To collect study samples and medical information on people with Erdheim Chester Disease.
Principal Investigator: Kevin O’Brien, CRNP
Contact Information: Kevin O’Brien, CRNP, ko85t@nih.gov, 301-435-2824
Requested Patient Involvement:  ECD patients of any gender and ethnicity age 2-80 years are eligible to enroll in this protocol.
Known Centers Accepting ECD patients in the trial: National Institutes of Health, Bethesda, MD, USA
ClinicalTrials.gov Identifier: NCT01417520