研究目的: To collect study samples and medical information on people with Erdheim Chester Disease.
项目负责人: Kevin O’Brien, CRNP
联系方式: Kevin O’Brien, CRNP, ko85t@nih.gov, 301-435-2824
要求患者参与:  ECD patients of any gender and ethnicity age 2-80 years are eligible to enroll in this protocol.
已知参与该试验并接收ECD患者的中心: National Institutes of Health, Bethesda, MD, USA
ClinicalTrials.gov 标识符: NCT01417520