Dear Friend,
Kathy Brewer finally learned the name of the disease that had made her husband, Gary, so ill. But the answer came after his death.
For years, Gary’s health declined without a diagnosis. Only an autopsy revealed Erdheim-Chester Disease.
Kathy could not change what happened to Gary. She helped build something that would support the families who followed.
In 2008, Kathy and other caregivers connected online in a group initially representing just six patients. They began creating a place where families could find information about a disease few people had heard of.
That purpose continues through the Erdheim-Chester Disease Global Alliance.
Your gift supports research, education, awareness, and patient support, helping families find information, knowledgeable care, and a community that understands.
Our Year-End Campaign includes matching funds up to a total of $90,000.
Help our families find answers.
Avec toute ma gratitude,
L'Alliance mondiale contre la maladie d'Erdheim-Chester