Belangenbehartiging brengt verandering teweeg

Rare diseases need people willing to speak up.

Elk gesprek over ECD can increase awareness and help patients, families, healthcare professionals, and communities better understand this ultra-rare disease.

You don’t have to be an expert to be an advocate.

Your voice can make a difference.

Kom in actie: Share one thing you’ve learned over ECD this month with someone who didn’t know about the disease before.

Help one more person #KnowECD.