वकालत बदलाव लाती है

Rare diseases need people willing to speak up.

हर बातचीत ईसीडी के बारे में can increase awareness and help patients, families, healthcare professionals, and communities better understand this ultra-rare disease.

You don’t have to be an expert to be an advocate.

Your voice can make a difference.

कार्रवाई करें: Share one thing you’ve learned ईसीडी के बारे में this month with someone who didn’t know about the disease before.

Help one more person #KnowECD.