La defensa de una causa genera cambios

Rare diseases need people willing to speak up.

Cada conversación Acerca de ECD can increase awareness and help patients, families, healthcare professionals, and communities better understand this ultra-rare disease.

You don’t have to be an expert to be an advocate.

Your voice can make a difference.

Ponte en acción: Share one thing you’ve learned Acerca de ECD this month with someone who didn’t know about the disease before.

Help one more person #KnowECD.