The Erdheim-Chester Disease Global Alliance is pleased to announce that the videos from our recent Patient & Family Gathering and Medical Symposium are now available to view.

Each year, these events bring together patients, caregivers, family members, researchers, and medical professionals from around the world to share knowledge, experiences, and the latest developments related to Erdheim-Chester Disease.

Whether you attended the events and would like to revisit a presentation or were unable to join us this year, these recordings provide an opportunity to learn from leading experts and hear important discussions from our global ECD community.

Blant høydepunktene er:

  • Foredrag fra internasjonalt anerkjente spesialister på tidlig barndomsutvikling
  • Forskningsnyheter og vitenskapelige fremskritt
  • Spørsmål og svar-diskusjoner
  • Insights from the annual Medical Symposium

We are grateful to all of the speakers, attendees, volunteers, and supporters who helped make these events a success.

To access the videos, visit:

Spilleliste for pasient- og familiesamlingen 2026

Spilleliste for medisinsk symposium 2026

Takk for at du er en del av ECD-fellesskapet og for at du hjelper oss med å fremme bevissthet, støtte, opplæring og forskning knyttet til Erdheim-Chester-syndromet.