The Erdheim-Chester Disease Global Alliance is pleased to announce that the videos from our recent Patient & Family Gathering and Medical Symposium are now available to view.

Each year, these events bring together patients, caregivers, family members, researchers, and medical professionals from around the world to share knowledge, experiences, and the latest developments related to Erdheim-Chester Disease.

Whether you attended the events and would like to revisit a presentation or were unable to join us this year, these recordings provide an opportunity to learn from leading experts and hear important discussions from our global ECD community.

Highlights include:

  • Presentations from internationally recognized ECD specialists
  • Research updates and scientific developments
  • Question and answer discussions
  • Insights from the annual Medical Symposium

We are grateful to all of the speakers, attendees, volunteers, and supporters who helped make these events a success.

To access the videos, visit:

2026 Patient and Family Gathering Playlist

2026 Medical Symposium Playlist

Thank you for being part of the ECD community and for helping us advance awareness, support, education, and research related to Erdheim-Chester Disease.