En septembre prochain, l'ECD Global Alliance lancera sa campagne la plus ambitieuse à ce jour dans le cadre du Mois de sensibilisation à la maladie d'Erdheim-Chester. Articulée autour du thème « Connaître l'ECD. Changer des vies. », cette initiative d'une durée d'un mois vise à sensibiliser le public, à favoriser un dépistage précoce et à aider davantage de personnes à accéder à des soins spécialisés, à des informations fiables et à une communauté mondiale solidaire.
Throughout September, we’ll share new educational content that tells the story of ECD in a meaningful and engaging way. Each week will highlight a different aspect of the disease, from understanding the basics of ECD and recognizing symptômes to learning about research, Centres de soins, patient experiences, and the many ways our community supports one another. During ECD Information Week, each day will feature its own special theme, helping shine a brighter light on this rare disease.
You’ll also see physician interviews, patient and caregiver stories, educational vidéos, infographics, downloadable ressources, interactive activities, and Care Center spotlights throughout the month. Ziggy will serve as our Awareness Month guide, helping explain ECD through quick facts, educational content, and messages of hope and encouragement for patients and families around the world.
September is an opportunity for all of us to learn, share, and help make Erdheim-Chester Disease more widely recognized. Together, we can increase awareness, promote earlier diagnostic, and bring more hope to patients and families around the world.