We are excited to announce that Ya está abierto el plazo de inscripción para el 2026 ECD Global Alliance Patient & Family Gathering, taking place in Birmingham, Alabama!
La inscripción anticipada está disponible hasta el 1 de febrero de 2026.. We encourage you to register early to take advantage of this special rate and to help us plan for the best possible experience for all attendees.
This annual event brings together patients, caregivers, family members, clinicians, and researchers for a time of connection, education, and hope. It is one of the most meaningful opportunities we have each year to support one another, learn from leading experts, and strengthen our community.
Detalles del evento
Ubicación: Birmingham, Alabama
Encuentro con los fans: 29 de abril de 2026
Encuentro de pacientes y familiares: 30 de abril de 2026
Organizado por:
- La Alianza Global para el Desarrollo de la Primera Infancia
- Facultad de Medicina de la UAB
Qué puedes esperar
- Educational sessions covering the latest in ECD research and treatment
- Presentations from leading medical experts
- Supportive discussions for patients and caregivers
- Opportunities to relacionarse con los demás living the ECD journey
- Community-building activities and shared experiences
This conference is designed to empower, inform, and inspire — whether you are newly diagnosed or have been part of the ECD community for years.
Ya está abierto el plazo de inscripción
Secure your spot today and be part of this important gathering.
For additional details about the event, please visit our website at erdheim-chester.org.
If you have any questions, you can also reach us directly at support@erdheim-chester.org — we’re here to help.
We look forward to welcoming you to Birmingham and sharing this enriching weekend together.