认识患者导航员

认识患者导航员

有时,你听到的最重要的一句话就是:“我可以帮到你。”ECD患者导航员帮助患者及其家属查找信息、了解可用资源、与ECD社区建立联系,并确定合适的下一步行动。你不必…….
没有人能独自应对早期儿童发展问题

没有人能独自应对早期儿童发展问题

被诊断出患有ECD可能会让人感到不知所措,尤其是当这种疾病是大多数人从未听说过的。但没有人需要独自面对ECD。在世界各地,患者和家属通过一个相互理解、倾听、分享并相互支持的社区紧密相连…….
感谢我们的研究界

感谢我们的研究界

随着“早期儿童发育(ECD)宣传月”又一周的结束,我们向所有为取得进展做出贡献的人致以敬意。感谢那些寻求答案的医生、做出新发现的研究人员、参与研究的患者及其家属,以及每一位支持者…….
展望未来

展望未来

The future of ECD research is full of possibility. Researchers around the world continue exploring new treatments, better ways to diagnose ECD, and deeper insights into how the disease develops. There is still work to do, but every new discovery brings new hope. The...
Celebrating Progress

Celebrating Progress

Not long ago, very little was known about ECD. Today, researchers understand far more about the disease than ever before. Advances in diagnosis, greater collaboration among specialists, and continued scientific discovery are helping shape a brighter future. Every...