As we close another week of ECD Awareness Month, we celebrate everyone who makes progress possible. Thank you to the physicians searching for answers, the researchers making discoveries, the patients and families who participate in research, and every supporter who...
Progress happens because people work together. Patients, caregivers, physicians, researchers, volunteers, advocacy organizations, supporters, and ECDGA all play an important role in moving ECD research forward. See this collaboration in action and explore...
The future of ECD research is full of possibility. Researchers around the world continue exploring new treatments, better ways to diagnose ECD, and deeper insights into how the disease develops. There is still work to do, but every new discovery brings new hope. The...
Behind every discovery are dedicated physicians and researchers working to improve the lives of people with ECD. Their commitment to caring for patients, conducting research, and sharing knowledge continues to move the field forward. Today we celebrate the experts...
Hope begins with expert care. ECD Care Centers bring together physicians with experience diagnosing and treating this ultra-rare disease. They also help advance research, educate healthcare professionals, and improve care for patients around the world. Click Here to...
Bewegung finden, die zu Ihnen passt Das Leben mit der Erdheim-Chester-Krankheit (ECD) bedeutet oft, sich auf Veränderungen in Bezug auf Energie, Mobilität, Gleichgewicht, Kraft oder Ausdauer einzustellen. Auch wenn die Erfahrungen jedes Einzelnen unterschiedlich sind, gilt doch eines: Bewegung ist wichtig. Das Gute daran...
