We’re excited to share a new animated short featuring Ziggy the Zebra, the ECD community’s friendly mascot. In this brief video, Ziggy explains how the ECD Global Alliance hosts monthly online chats and webinars to help patients, caregivers, families, researchers, and medical professionals stay connected and informed.
These virtual gatherings provide a safe and welcoming space to discuss a wide range of topics related to Erdheim-Chester Disease, including 诊断, treatment, 症状, and quality of life. They also offer an opportunity for community members to build lasting relationships and find support through shared experiences.
If you have not yet registered with the ECD Global Alliance, we encourage you to do so at www.erdheim-chester.org to receive notifications about upcoming chats relevant to your role.
Watch now to learn how the ECD community connects from around the world through conversation, support, and shared understanding.
埃尔德海姆-切斯特病全球联盟（ECDGA）不提供医疗建议、诊断或 治疗方法. 所有内容仅供参考。如有医疗问题，请咨询医疗保健专业人员。.