Hope begins with expert care.

ECD Zorgcentra bring together physicians with experience diagnosing and treating this ultra-rare disease. They also help advance research, educate healthcare professionals, and improve care for patients around the world.  Click Here to see a list of Zorgcentra.

Every new Care Center helps strengthen the future of the ECD community.

Please comment with what ECD Care Center are you seen at?

Hope grows when expertise is shared.