Diabetes Insipidus

A private community for people with Arginine Vasopressin Deficiency (AVP-D) or resistance, offering peer support and shared experiences. Got Diabetes Insipidus? Got Arginine VasoPressin Deficiency or Resistance? (Facebook Group, will need to ask to join)

Pituitary Foundation

Offers guidance on AVP Deficiency (Diabetes Insipidus) treatment, including information on managing symptoms and accessing support. AVP Deficiency Treatment with a download for Advice For AVPD-DI Patients

Air Charity Network

Air Charity Network is a charitable organization that provides access for people in need who are seeking free air transportation to specialized health care facilities or distant destinations due to family, community, or national crisis. Air Charity Network serves all...

Frame Family Foundation

Supports patients and families affected by histiocytic disorders while promoting research and awareness worldwide.

Stichting Histiocure

Een stichting die zich inzet om het leven van patiënten met histiocytose te verbeteren door onderzoek te financieren, voorlichting te geven en gezinnen te ondersteunen.

Eric’s Journey Foundation

A U.S.-based foundation dedicated to supporting families, raising awareness, and advancing research for histiocytic disorders.