An Erdheim-Chester Disease diagnosis brings questions no family should have to navigate alone. Your support helps ECDGA provide trusted information, connections to experienced care, and a community that understands. Our Year-End Campaign begins today, with donations...
Kathy Brewer finally learned the name of the disease that had made her husband, Gary, so ill. But the answer came after his death. For years, Gary’s health declined without a diagnosis, despite extensive evaluations at major medical centers. Only an autopsy revealed...
“We are excited to welcome Mary as our new Executive Director and look forward to the energy, experience, and passion she brings to our mission and our community.” – Diane Schriner, President of the Board of Directors Leadership Announcement Mary Burgin is honored to...
Up to $60,000 USD is available for a two-year project advancing research into Erdheim-Chester Disease and related adult histiocytic disorders. The ECD Global Alliance is now accepting letters of intent for its Early Career Investigator Grant, a research funding...
L'ECD est peut-être rare, mais personne ne doit y faire face seul. Partout dans le monde, des patients, des aidants, des médecins, des chercheurs, des bénévoles et des défenseurs de la cause travaillent ensemble pour bâtir un avenir meilleur pour toutes les personnes touchées par l'ECD. La distance nous sépare peut-être, mais notre communauté….
