La FDA ha concedido la designación de «terapia innovadora»

La FDA ha concedido la designación de «terapia innovadora»

The US Food and Drug Administration has granted a Breakthrough Therapy Designation to cobimetinib in the treatment of patients with histiocytic neoplasms (Erdheim-Chester Disease, Rosai-Dorfman, Langerhans Histiocytosis), who do not bear the BRAF V600 mutation. This...
El Registro de Pacientes con ECD está buscando participantes

El Registro de Pacientes con ECD está buscando participantes

The ECD Global Alliance announces the launch of the Registry for Patients with Erdheim-Chester Disease led by Memorial Sloan Kettering Cancer Center (MSK), in New York, NY.  The next step in building the registry database includes recruiting patients with ECD to...
Junio de 2018: Sesión de formación médica del Houston Methodist |

Junio de 2018: Sesión de formación médica del Houston Methodist |

Medical residents and physicians at Houston Methodist Hospital in Houston, TX learned about Erdheim-Chester disease from ECD Care Center lead, Mark Heaney, MD, PhD from Columbia University Medical Center.  Also in attendance was ECDGA President, Kathy Brewer.