Participating in the ECDGA’s annual Run, Walk & Roll for Hope is powerful on its own—but forming a team can take your involvement to an entirely new level. Whether you’re rallying coworkers, uniting family members, or gathering a group of friends, creating a team...
The 2025 Run, Walk & Roll for Hope brings together supporters from all corners of the globe in the fight to raise awareness for Erdheim-Chester Disease (ECD). For those participating virtually, your impact is just as powerful—and with a little creativity and...
Each year, the Erdheim-Chester Disease Global Alliance (ECDGA) invites the world to come together for one powerful reason: to raise awareness for Erdheim-Chester Disease (ECD), a rare and often misunderstood form of blood cancer. The Run, Walk & Roll for Hope...
Every year, a powerful wave of determination, compassion, and solidarity spreads across the globe as individuals lace up their shoes to participate in the Erdheim-Chester Disease Global Alliance’s (ECDGA) annual Run, Walk & Roll for Hope. Scheduled for 2025, this...
Η Παγκόσμια Συμμαχία για τη Νόσο Erdheim-Chester (ECDGA) είναι στην ευχάριστη θέση να ανακοινώσει τον Παγκόσμιο Εικονικό Αγώνα Τρεξίματος, Πεζοπορίας και Ποδηλασίας «Steps Towards Awareness & Hope» του 2025! Από τις 16 Ιουνίου έως τις 15 Ιουλίου 2025, προσκαλούμε ΕΣΑΣ — ασθενείς, φροντιστές, υποστηρικτές και ακτιβιστές από όλο τον κόσμο...
