Not long ago, very little was known about ECD. Today, researchers understand far more about the disease than ever before. Advances in diagnosis, greater collaboration among specialists, and continued scientific discovery are helping shape a brighter future. Every...
Behind every discovery are dedicated physicians and researchers working to improve the lives of people with ECD. Their commitment to caring for patients, conducting research, and sharing knowledge continues to move the field forward. Today we celebrate the experts...
Every breakthrough starts with a question. Clinical research helps us better understand ECD, improve diagnosis, evaluate treatments, and learn more about how this rare disease affects people. Each study brings us one step closer to better care for future patients. ...
Hope begins with expert care. ECD Care Centers bring together physicians with experience diagnosing and treating this ultra-rare disease. They also help advance research, educate healthcare professionals, and improve care for patients around the world. Click Here to...
Trovare l’attività fisica più adatta a te Vivere con la malattia di Erdheim-Chester (ECD) spesso significa adattarsi ai cambiamenti a livello di energia, mobilità, equilibrio, forza o resistenza. Sebbene l’esperienza di ciascuno sia diversa, una cosa rimane certa: l’attività fisica è importante. Il bello...
