Give a huge round of applause to Team Rocky Mountain High Captains, (Bob and Janet Froetscher), who completed an incredible 10-mile bike ride as part of the ECDGA Virtual Fun Run, Walk or Roll! Every mile they rode helps raise awareness, fund research, and provide...
For many people, sunshine means outdoor activities, vacations, and time spent with family and friends. For individuals living with Erdheim-Chester Disease (ECD), however, sun exposure can sometimes present unique challenges that deserve attention. While ECD itself...
When someone hears the words “You have Erdheim-Chester Disease,” they often have more questions than answers. Where do I find information? Who can help me understand this disease? What treatment options exist? How can I find others experiencing this...
Did you know? A gift made today goes twice as far because of our Final Week $10,000 Matching Challenge. Every dollar helps ECDGA provide patient support, educational resources, advocacy, research and connections to the global ECD community. Donate before June 30 and...
We have an incredible opportunity. A generous donor has offered $10,000 in matching funds for the final days of our ECDGA Virtual Fun Run, Walk. and Roll.. That means every dollar donated through June 30 will be doubled. We’ve raised $5,790 so far, and...
The ECD community has always shown what is possible when people come together for a common purpose. This week, we have an exciting opportunity to maximize that impact. A generous supporter has offered to match all donations made during Week 3 of the ECDGA Fun Run,...
