The Erdheim-Chester Disease Global Alliance is pleased to announce that the videos from our recent Patient & Family Gathering and Medical Symposium are now available to view. Each year, these events bring together patients, caregivers, family members, researchers,...
WEEK 2 CHALLENGE IS HERE! This week is all about building your team! Recruit 5 or more new team members and your team will receive a $150 bonus added to your fundraising total! Invite friends, family, coworkers, neighbors, and supporters to join your team today....
Welcome to Week 2 of the ECDGA 3rd Annual Fun Run, Walk or Roll! This week, we’re focusing on one of the most important parts of our event—building your team. Every new participant helps us raise awareness of Erdheim-Chester Disease and expands the reach of our...
The wait is over the ECDGA Fun Run officially begins today! To celebrate launch week, we are excited to announce our special kickoff challenge: FAST START MATCH WEEK During the first week of the Fun Run, the Top 3 Teams and the Top 3 Individual Fundraisers will each...
The ECD Global Alliance is excited to announce that our 3rd Annual Fun Run will take place from June 1–30, 2026! Registration is officially open, and we invite patients, caregivers, families, friends, and supporters from around the world to join us for this special...
https://www.erdheim-chester.org/wp-content/uploads/2026/05/ezgif-1b6e08c1f56ee3e9.mp4 Ziggy is proud to announce the ECDGA 2026 Award Honorees individuals whose leadership, dedication, and advocacy continue to inspire meaningful change throughout the...
