A video from Memorial Sloan-Kettering Cancer Center in New York features an ECD patient, Rita, who is currently enrolled in the vemurafenib trial. Rita’s is a remarkable story that begins at the 2 minutes, 22-second mark of this 5-1/2 minute video.
The August 2014 NIH Clinical Center Newsletter featured a story about the planned 2014 ECD Medical Symposium hosted by the NIH, in partnership with the ECD Global Alliance.
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