दिसम्बर 31, 2014
A newspaper article was written about Leslie Adler, and her experiences living with ECD.
दिसम्बर 31, 2014
A picture and story (story not available online) about Bonnie Schulz, a patient living with ECD.
दिसम्बर 31, 2014
A video from Memorial Sloan-Kettering Cancer Center in New York features an ECD patient, Rita, who is currently enrolled in the vemurafenib trial. Rita’s is a remarkable story that begins at the 2 minutes, 22-second mark of this 5-1/2 minute video.
दिसम्बर 31, 2014
The August 2014 NIH Clinical Center Newsletter featured a story about the planned 2014 ECD Medical Symposium hosted by the NIH, in partnership with the ECD Global Alliance.
दिसम्बर 28, 2014
Hariharan U, Goel AV, Sharma D. J Anaesthesiol Clin Pharmacol. 2014 Apr;30(2):297-8. doi: 10.4103/0970-9185.130127
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