During ECD Awareness Month, we’ve talked about research, expert care, patients, caregivers, families, volunteers, advocacy, and the people working every day to create progress. But awareness shouldn’t end when the month does. Every person who learns,...
The ECDGA Virtual Fun Run/Walk/Roll is gaining global traction, with participants already joining in from across the United States and beyond. We recently added Canada, Great Britain, New Zealand, and Australia and now we’re calling on supporters from around the world...
The ECDGA Virtual Fun Run/Walk/Roll is picking up momentum with participants from 25 states and counting. We’re on a mission to fill in the entire U.S. map, and we’d love to see your state represented. Whether you walk, run, or roll, you can make a difference. Join us...
When it comes to raising awareness for Erdheim-Chester Disease (ECD), every mile counts—and every method of movement matters. In the 2024 ECDGA Fun Run, one incredible team reminded us all of that in the best way possible. Meet Team Peddling Froetschers—a powerhouse...
This year’s ECDGA Patient and Family Gathering in Barcelona brought together patients, caregivers, and medical professionals from around the world. This group photo captures the spirit of connection and community that defines this annual event. Together, we share...
