Chats are open for any discussion topic within reason. Often discussed topics include ECD diagnosis issues, treatments, tests, knowledgeable doctors, symptoms, treatment side effects, and sometimes just friendly discussions about pleasant things happening in participants’ lives. Most who attend the sessions have found connections and continue to correspond outside of the chat sessions. The meetings […]
Date: Apr 15, 2025
Time: 12:00 pm
Chats are open for any discussion topic within reason. Often discussed topics include ECD diagnosis issues, treatments, tests, knowledgeable doctors, symptoms, treatment side effects, and sometimes just friendly discussions about pleasant things happening in participants’ lives. Most who attend the sessions have found connections and continue to correspond outside of the chat sessions. The meetings also provide a support structure for those who are interested in learning as much as they can about ECD and providing mutual support to each other.
Speaker: Oshrat Rokah, PhD Molecular Research Laboratory Assuta Medical Center Tel-Aviv, Israel Date: Thursday, July 16, 2026 Time: 12:00 PM CDT Dr. Oshrat Rokah is the head of the Molecular Research Lab at Assuta Medical Center, located in Tel Aviv, Israel. She holds a PhD from the Department of Genetics in the Faculty of Medicine […]
Chats are open for any discussion topic within reason. Often discussed topics include ECD diagnosis issues, treatments, tests, knowledgeable doctors, symptoms, treatment side effects, and sometimes just friendly discussions about pleasant things happening in participants’ lives. Most who attend the sessions have found connections and continue to correspond outside of the chat sessions. The meetings also provide a support structure for those who are interested in learning as much as they can about ECD and providing mutual support to each other.
Chats are open for any discussion topic within reason. Often discussed topics include ECD diagnosis issues, treatments, tests, knowledgeable doctors, symptoms, treatment side effects, and sometimes just friendly discussions about pleasant things happening in participants’ lives. Most who attend the sessions have found connections and continue to correspond outside of the chat sessions. The meetings also provide a support structure for those who are interested in learning as much as they can about ECD and providing mutual support to each other.
Chats are open for any discussion topic within reason. Often discussed topics include ECD diagnosis issues, treatments, tests, knowledgeable doctors, symptoms, treatment side effects, and sometimes just friendly discussions about pleasant things happening in participants’ lives. Most who attend the sessions have found connections and continue to correspond outside of the chat sessions. The meetings also provide a support structure for those who are interested in learning as much as they can about ECD and providing mutual support to each other.
Chats are open for any discussion topic within reason. Often discussed topics include ECD diagnosis issues, treatments, tests, knowledgeable doctors, symptoms, treatment side effects, and sometimes just friendly discussions about pleasant things happening in participants’ lives. Most who attend the sessions have found connections and continue to correspond outside of the chat sessions. The meetings also provide a support structure for those who are interested in learning as much as they can about ECD and providing mutual support to each other.
We are excited to announce that the 12th Annual ECDGA Patient and Family Gathering will be held in Glasgow, Scotland in August 2027. This special event will bring together patients, families, researchers, clinicians, and advocates from around the world to connect, learn, and support one another. The gathering will be held in conjunction with the […]
We are excited to announce that the 12th Annual ECDGA Medical Symposium will be held in Glasgow, Scotland in August 2027. This special event will bring together researchers and clinicians from around the world to connect, learn, and support one another. The gathering will be held in conjunction with the Histiocyte Society meeting. Additional details, including […]
