Research Funding

The ECD Global Alliance is dedicated to enhancing all research and knowledge of Erdheim-Chester disease through supporting leading medical research. The ECD Global Alliance funds research dedicated to exploring the diagnosis, cause, treatments, and cure of Erdheim-Chester Disease.

In addition, the organization works with research teams and patients around the world to facilitate communication between the two groups.

Overview  

The ECD Global Alliance is dedicated to enhancing all research and knowledge of Erdheim-Chester disease through supporting leading medical research. The ECD Global Alliance funds research dedicated to exploring the diagnosis, cause, treatments, and cure of Erdheim-Chester Disease.

In addition, the organization works with research teams and patients around the world to facilitate communication between the two groups.

Grant Applications and Review Process

A call for Letters of Intent (LOI) is sent out to all known avenues for dissemination and is posted on the ECD Global Alliance website. Submitted LOIs (Letters of Intent) are reviewed by a committee of qualified researchers and clinicians.  The investigators submitting projects that hold the most promise for making a significant and lasting advance in the knowledge and treatment of ECD are then invited to submit a complete proposal.

A Grant Application Review (GAR) Committee made up of qualified researchers is assembled to review submitted application proposals. Individuals on the committee first review each application independently. The GAR Committee then comes together as a group to share comments and discuss each application submitted. This committee provides the ECD Global Alliance Board of Directors with a ranking order of the applications. The Board of Directors then makes the final funding decision and notifies the applicants. Letters of Intent are submitted via an LOI submission form and are reviewed per an LOI Review Process and criteria. Invited proposals are then submitted and reviewed according to the ECDGA Grant Application Process.

Current Grant Opportunities: Early Career Investigator Grant 

The ECDGA announces new funding cycles every year. If you are interested in receiving information about funding cycles, please register with the organization here.

The Erdheim-Chester Disease Global Alliance is pleased to announce a funding opportunity for Erdheim-Chester Disease and adult histiocytic disorders.  Up to $60,000 USD will be awarded.

Letters of Intent are due November 28, 2026.  This is a significant opportunity for all Early Career Investigators, defined as an individual who has not received previous funding for the study of ECD and is within ten (10) years of receiving their terminal degree or equivalent training.  All Early Career Investigators are urged to apply.

Previous Grants Awarded

In April 2010, only one month after receiving a 501(c)(3) designation, the ECD Global Alliance (ECDGA) announced it would be awarding a $50,000 ECD research grant and requested proposals to the international medical research community.  In November 2010, the first grant recipient was chosen.  Since then, the organization has awarded an annual $50,000 research grant to study Erdheim-Chester Disease and a $316,000 grant to establish an ECD Patient Registry. Additionally, grant collaborations with partners have been made to expand the research investments for ECD.