Erdheim-Chester Disease Global Alliance End of Year Campaign 2026

Nov 5, 2026

Dear Community Member

You have been part of the Erdheim-Chester Disease Global Alliance’s work to bring support, information, and hope to people affected by ECD. We remain grateful for your past generosity, and we are writing to invite you to join us again during our 2026 End of Year Campaign.

Your donation will be matched dollar for dollar, up to a total of $90,000 in matching funds for the campaign. While matching funds remain available, a gift of $50 becomes $100, $100 becomes $200, and $250 becomes $500 to support the ECD community.

For a person newly diagnosed with Erdheim-Chester disease, the diagnosis can bring difficult questions. Where can I find a physician who understands this disease? What information can I trust? How will my family manage what comes next?

Caregivers face questions of their own as they help coordinate appointments, support a loved one, and adjust to changing responsibilities. Having somewhere to turn for information and connection can help patients and families take their next steps.

Your renewed support can help ECDGA meet these needs while continuing to invest in research.

Through the generosity of donors like you, ECDGA works to:

  • Support patients and families by helping them find resources and connect with the ECD community.
  • Provide education through trusted information, webinars, and opportunities to learn from knowledgeable medical professionals.
  • Raise awareness so more people recognize ECD and understand the challenges it presents.
  • Fund research aimed at improving understanding, diagnosis, and treatment of this rare disease.These efforts depend on people who choose to give. Your past contribution helped sustain this work, and a gift today can help carry it forward.We recognize that circumstances change and that you have many worthy causes to consider. Whether you are able to renew your previous gift or give a different amount, we would be grateful to welcome you back as a donor. Every contribution is appreciated.Will you renew your support with a year-end gift? With the campaign match, your donation can provide twice the funding for ECDGA’s mission while matching funds remain available.You can make your gift online at www.erdheim-chester.org by selecting Donate, or mail a check payable to ECD Global Alliance to:Erdheim-Chester Disease Global Alliance
    P.O. Box 775
    DeRidder, LA 70634Thank you for the generosity you have already shown and for considering this invitation to give again. Your continued involvement can help patients and families find support today while helping researchers pursue better answers for tomorrow.With gratitude,Erdheim-Chester Disease Global Alliance

    P.S. Help us make the most of $90,000 in matching funds. Your gift will be matched dollar for dollar while funds remain available, doubling its support for the ECD community.