Connect with the community and other ECD caregivers

Join monthly Chat Sessions or sign up here to receive more information to support you in your role as a caregiver.

Connect with the community and other ECD caregivers!

The ECD Global Alliance is an advocacy organization comprised of a strong community dedicated to the awareness, support, education, and research related to Erdheim-Chester Disease. The community only gets stronger with the help of patients and their biggest supporters! 

Why do I need to register if the person I care for is already signed up?

  • We want to be able to provide resources that can be helpful for your specific journey.
  • You will receive invitations and details about upcoming events most related to your role.
  • You will be helping the ECDGA more easily connect caregivers with one another, inspiring more programs that may be interesting to you.

Here is a link to sign-up form for caregivers or family members wanting to stay connected to the advocacy group supporting their loved one battling ECD.  



Last updated: February 29, 2024

Contact Us

  • ECD Global Alliance, P.O. Box 775,
    DeRidder, LA 70634 USA

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