During the 2025 Patient and Family Gathering in Barcelona, Father Charles Balnaves was recognized as the ECDGA Community Champion. This honor is given to individuals who embody the spirit of compassion, support, and advocacy within the Erdheim-Chester Disease community.
Father Charles’s unwavering commitment to lifting up others, offering comfort, and fostering connection has made a lasting impact on the lives of many facing the challenges of ECD. We are proud to celebrate his dedication and the difference he continues to make.
Learn more about our mission and community at www.erdheim-chester.org.
L'Erdheim-Chester Disease Global Alliance (ECDGA) non fornisce consulenza medica, diagnosi o trattamenti. Tutti i contenuti sono forniti esclusivamente a scopo informativo. Per qualsiasi questione di natura medica, si prega di consultare un operatore sanitario.