During the 2025 Patient and Family Gathering in Barcelona, Father Charles Balnaves was recognized as the ECDGA Community Champion. This honor is given to individuals who embody the spirit of compassion, support, and advocacy within the Erdheim-Chester Disease community.
Father Charles’s unwavering commitment to lifting up others, offering comfort, and fostering connection has made a lasting impact on the lives of many facing the challenges of ECD. We are proud to celebrate his dedication and the difference he continues to make.
Learn more about our mission and community at www.erdheim-chester.org.
埃尔德海姆-切斯特病全球联盟（ECDGA）不提供医疗建议、诊断或 治疗方法. 所有内容仅供参考。如有医疗问题，请咨询医疗保健专业人员。.