埃尔德海姆-切斯特病全球联盟（ECDGA）自豪地宣布，备受瞩目的“马克·希尼纪念宣传奖”现已开始接受提名。 该年度奖项旨在纪念哥伦比亚大学著名血液学家马克·希尼博士的杰出贡献。自联盟成立之初直至他于2022年逝世，希尼博士的奉献精神对联盟的发展产生了深远影响。.
Dr. Heaney’s unwavering commitment to the ECD community has left an indelible mark, inspiring this award that honors individuals or groups who have demonstrated exceptional commitment to raising awareness of Erdheim-Chester Disease (ECD) and adult Histio-related conditions. The goal of these awareness activities is crucial—they aim to educate physicians and other key figures who can aid in the early and accurate diagnosis of ECD.
马克·希尼纪念宣传奖面向所有人开放——包括患者、护理人员、医疗专业人员、研究人员及朋友——无论其国籍或居住地如何。符合提名资格的候选人应是在过去12个月内开展了针对医疗和卫生专业人员的杰出且有效的宣传活动，旨在提高他们对早发性儿童痴呆症（ECD）的认识及早期诊断能力。.
如果您认识某位一直积极参与此类具有变革性意义的宣传活动的人士，我们鼓励您代表其提交提名。通过认可和表彰这些至关重要的贡献，ECDGA将继续推进其使命，即提高公众对这种罕见病的认识，并改善受该疾病影响人群的预后。.
To nominate an individual or group for the Mark Heaney Memorial Award for Awareness, please click the link below to access the nomination form. Help us honor the legacy of Dr. Mark Heaney and the many advocates who follow in his footsteps, dedicated to enlightening the medical community about ECD.
Nominations are now open. The recipient of the award will be announced during the upcoming ECDGA Annual Meeting. Join us in celebrating the champions of ECD awareness and their crucial role in changing the landscape of this disease.