Where our story began

Where our story began

Kathy Brewer learned that her husband, Gary, had Erdheim-Chester Disease only after his death. She could not change his experience, but she helped create something that would support the families who followed. That commitment became part of ECDGA’s foundation. Your...
Help the Next Family Find Answers.

Help the Next Family Find Answers.

An Erdheim-Chester Disease diagnosis brings questions no family should have to navigate alone. Your support helps ECDGA provide trusted information, connections to experienced care, and a community that understands. Our Year-End Campaign begins today, with donations...