An article about a man, with Erdheim-Chester Disease, who with his wife has started a nonprofit organization called, ‘Angel Hearts’. The organization is dedicated to helping families who are in need because of medical conditions, including illness and...
A short article appeared in the Japanese news media in September 2011. It states that the first lung transplant to an Erdheim-Chester Disease patient occurred at Okayama University Hospital in Japan.
An inspirational first-person account from someone who is living with ECD. *A version of the “A Man Blessed” story from above that does not require a subscription to the newspaper.
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