The ECD Global Alliance is excited to announce that our 3rd Annual Fun Run will take place from June 1–30, 2026! Registration is officially open, and we invite patients, caregivers, families, friends, and supporters from around the world to join us for this special...
Last week, ECDGA President Diane Schriner and ECDGA Staff Member Jerome Henson represented the Erdheim-Chester Disease Global Alliance (ECDGA) at the American College of Rheumatology (ACR) Annual Conference, joined by Dr. Mitali Sen, a rheumatologist from the...
https://www.erdheim-chester.org/wp-content/uploads/2025/09/Thank-You-ECD-video.mp4 Ziggy the Zebra, the beloved mascot of the Erdheim-Chester Disease Global Alliance (ECDGA), is here with a heartfelt message of gratitude. To our patients, families, friends, and...
Erdheim-Chester Disease Global Alliance Announces 2026 Patient & Family Gathering and Medical Symposium Birmingham, AL — The Erdheim-Chester Disease Global Alliance (ECDGA) and UAB School of Medicine invites patients, families, healthcare professionals, and...
https://www.erdheim-chester.org/wp-content/uploads/2025/09/Realistic_cinematic_video_202509092213_p7lyu.mp4 Ziggy the Zebra is back with a special challenge for Erdheim-Chester Disease Awareness Week—wear your stripes! By putting on stripes this week, you’re showing...
