Objetivo do estudo: This is an initiative at MSK to provide gene testing on ECD biopsy samples for free, for any ECD patient worldwide.  A telephone conversation is required to obtain consent.  Biopsy samples can be sent by mail. An in-person visit to MSK is not required.
Pesquisador principal: David Solit, MD; Contact: Eli L. Diamond, MD
Informações de contato: Dr. Eli L. Diamond, 212-610-0243, diamone1@mskcc.org
Envolvimento solicitado do paciente: Currently enrolling patients, for more information contact Dr. Diamond above.
Identificador do ClinicalTrials.gov: N/A